Neurodiversity

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(I plan on writing more later but here is a short piece for now).

Sometimes, often times, it is dangerous to be an autistic living in a non-autistic world.  This is one reason why I believe that treatment must begin as early as possible so that proper social skills can be learned as much as possible.

To make matters worse, high functioning autistic people are often lonely and starving for love so they will grab onto the first person that offers.

Autism is also a “big” topic in today’s world and people are taking advantage of this to make as much money as possible.  I’ve been asked and had opportunities to “publicize” my “story” but I honestly don’t think that I should be making money off of my life like that:  it just doesn’t feel right to me.

Positive autism feature:  people with autism are often very moral and ethical, some more so than others although there are certainly people with autism who are not.

In order to be unethical and take advantage of another person a person requires a heavy social conscience, which is obviously lacking in the brain of an autistic person, hence why autsistic people rarely take advantage of others and are often very trusting.

But if you have been taken advantage of enough in your life you begin to recognize certatin patterns and certain traits about people that do this to others.

Positive autism feature:  ability to recognize patterns.

If you see it happening, do something, or try to the best of your ability.  It may take awhile before anyone listens and you may have to take some drastic measures but if you get it to stop than it is worth it.

This is a true understanding of “Neurodiversity:”  everyone has different levels and abilities and requires different support and if you believe in the concept of “Neurodiversity” you would do what you could to help.

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I can only read and write when I take Adderall and a Diet Coke or two doesn’t hurt, either.  I don’t know how much of my cognitive problems are due to autism, other neurological problems or the abuse I have suffered, both “typical” abuse and through “treatments” but I suppose it doesn’t truly matter as long as I treat the symptoms.

I’m pretty convinced that many in the online autism community suffer from “borderline” traits and some even from full-blown borderline personality disorder, though none of them will admit it.  I understand the denial:  I was in denial myself for awhile because of the harsh stigma of BPD.

I know that many of today’s high-functioning autistics suffer from “borderline” traits because most of us grew up without proper support, understanding and most of us were abused in some form, whether it was bullying, physical, emotional, sexual or any other type of abuse.  These types of situations are breeding grounds for “borderline” traits and anger.  All of us seem to suffer from anger, which is a core feature of BPD.

I know that “Neurodiversity” came about because of this anger.  Most “advocacy” comes about because of injustice.

I know that Ari Ne’eman was a very angry young man, understandably (and perhaps he still is).  I don’t know much about his past except that he was bullied, which in itself is enough to cause plenty of anger.  He took his anger and became a fierce advocate which is what I will eventually do, which is what all of the advocates have done.

Sometimes I worry about Ari though.  He seems to try to do everything and please everyone, but you can’t do everything and please everyone all of the time.  Sometimes people end up like me; sometimes they end up like Ari.

I hear that Ari is applying to be a Rhodes Scholar.  I secretly hope that he doesn’t get it, not because I am “jealous” or because I want him to fail, but because I honestly think it would be the best thing for him psychologically.  He needs to come over to my side for a liitle while.  And I need to go over to his.  Balance is key, the middle way.  Ari needs a vacation:  he’s not perfect.

Are you reading this, Ari?  Don’t worry, you’re already good enough.

Come to the lazy side for a little while:  you might enjoy it.

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Dali/Apparition of the Face of Aphrodite

Today I turn 22.  22:  the year that many finish college but I have only finished a little over a year.  At the moment I don’t attend because I don’t have the right support:  not merely the financial support but the emotional/psychological support, which is infinitely more necessary.  Maybe one day I will earn a degree.  I honestly don’t know why since I don’t feel it will help me with my career goals at all but it certainly would feel good to say “I did it!”  If I could earn my degree I would have a double major in philosophy and some other useless subject I enjoy, like art or literature or art history or something of the sort.

What are birthdays good for?  Change.  You turn a year older, hopefully become a little bit wiser.

I think my therapy is finally starting to kick in.

My diagnoses that are the result of my past are borderline personality disorder, PTSD and major depression.  I hate the BPD label because it is the most stigmatized mental condition there is and many therapists won’t treat BPD patients even though they need therapy the most.  A pretty much identical diagnosis to BPD is Complex Post Traumatic Stress Disorder but it is rarely diagnosed because it isn’t an official diagnosis in the DSM, unlike BPD.  I prefer to use CPTSD over BPD because it takes the blame away from me, my “personality,” and instead places it where it should be:  complex trauma.  I think that my BPD/CPTSD diagnosis can be seen pretty well via the internet:  you can tell by my thoughts and behavior.  It is interesting because in real life I rarely interact with people thus they typically have no idea about my history:  but over the internet I am able to voice my thoughts so people are able to recognize my thought patterns.

It is a shame that BPD is so stigmatized because BPD people are some of the most sensitive, caring, intelligent and gifted people on this planet.  Some people with extremely mild abuse develop BPD and some who are severely abused do not.  Yes, not everyone who is severely abused develops BPD:  it takes a special kind of person to develop this disorder.  In order to develop BPD a person must be very emotionally sensitive; they must be “gifted” in this way, they must be a “highly sensitive person.”  Otherwise, the disorder cannot develop.  I’ve read that people who are not sensitive can develop BPD but I know that isn’t true:  it is impossible to develop BPD unless you are highly sensitive because BPD is truly nothing but being extremely emotional.  One researcher (Marsha Linehan) stated, “People with BPD are like people with third degree burns over 90% of their bodies. Lacking emotional skin, they feel agony at the slightest touch or movement.”  I think it is fair to say that all “borderlines” are gifted in some way.

BPD can also only develop in childhood.  Adults, no matter how badly abused, cannot develop BPD.  They can develop PTSD but since their “personality” development is already complete the development of BPD is impossible.  Abuse must begin at an early age, typically a very early age, typically severe abuse, in order for BPD to develop.

In my opinion BPD and autism have nothing in common and I honestly don’t understand the argument of those that say they do.  My trauma based disorders (BPD, PTSD and depression) are completely separate from my autism disorder (Autistic Disorder without mental retardation a.k.a High-functioning Autism/HFA).  People with ASDs can develop trauma based disorders just like people without ASDs since people with ASDs are, first and foremost, people.  Sometimes I’ll read the argument that a person cannot have an ASD because they also have a psychiatric disorder such as BPD.  That, of course, is simply beyond ignorant.  I also hate to read that people with autism don’t experience certain types of behavior as “abuse” because of their autism.  I remember reading a book once by an autistic person who stated that she didn’t experience some of what had happened to her as “abuse” because of autism and therefore the abuse didn’t effect her.  That is completely ludicrous.  To me that says:  “It’s okay to abuse an autistic person in this way because it doesn’t effect them anyway.”  I can’t speak for any other autistic person but all abuse effects me just like a non-autistic person.  I may express and experience the symptoms differently than a non-autistic person but it still effects me.  Just because an autistic person rejects her parents, doesn’t want to be touched, doesn’t want anyone to intrude upon her world, doesn’t mean that the parents can neglect the child, abuse her and that the autistic person won’t be damaged.  The autistic person will be damaged because autistic people are people.

I have been seeing my therapist for ten months now but have only seen him about six times.  Currently I see him once a month although he desires to see me on a weekly basis or more.  But, being a shrink, he knows that you must move incredibly slowly with someone that has a history such as mine or nothing can ever truly be accomplished.

“…you avoid words of love like the plague and pretend you don’t hear.”  I remember reading this in the excellent book I read recently April Witch.  I think that this is something that is very true in my own life.

I try my hardest to keep everyone at a distance, especially those who have the potential to care about me the most.  I’ve been hurt the most by people who were supposed to love me the most so it is better to have no one love you at all and to keep those with that potential the furthest away from you.  The best way to do this, of course, is to act like a complete bitch and I think I’ve accomplished this goal pretty well:  not many people seem to want to be around me at all.  Mission accomplished.

If anyone via the internet thinks they get it bad from me be glad you are not my therapist.  I don’t know how he does it.  Well, I do know:  he is trained in this sort of thing, obviously.  He knows to take nothing personally, to never judge, because all of my rage is not directed at him personally but at those who have hurt me.  I have a male therapist, too.  An older (in his 50’s) male therapist so you can imagine the type of transference he gets from me yourself.  I wouldn’t trade him for the world though because he truly is an excellent therapist, no matter how much I may fear him.

Transference.  I hate transference.  If a person has a history like mine and attacks someone that he or she has never truly talked to or even knows well chances are that he or she is acting out “transference.”  “Love at first sight” is almost always transference.  Transference can go both ways, from the most negative feelings to the most positive.  Typically the targets of my transference, whether positive or negative (in my case, usually negative), somehow reminds me of those who have hurt me because that person may have the potential to hurt me again and my defenses unconsciously operate, which typically means keeping that person as far away from me as possible (re:  by being a complete bitch).  Males, especially very kind males in some sort of position of power or authority, father and mother figures are all potential transference subjects.  Do I really hate them?  Of course not.  You cannot hate a person unless you actually know them and I don’t truly know the people I attack the most so it is impossible for me to hate them:  my behavior is the result of transference.

This has been a completely unconscious motivation until very recently.  And by “recently” I mean like two days ago, literally.  Most therapists avoid patients like me because I just “ooze” with transference potential, as do most with my history, which is a shame because people like me are the ones that need therapy the most.  It is very difficult to deal with transference because not everyone can recognize it, not even those who are supposed to.  Not all therapists are trained to understand the complex process of transference and only end up further damaging the patient in their attempts to help through their counter-transference.  Some therapists take a patient’s transference personally, that what they project onto the therapist is actually about the therapist him or herself and not about people in the patient’s past.  In people with a history like mine transference happens in all relationships, not merely with the therapist, although transference is typically strongest with the therapist.  And, of course, this is why one goes to therapy:  to discover the unconscious motivations for their behavior and to stop them.  Transference is never a “choice” because it is completely unconscious:  to state that a person with a history such as mine can “choose” to act a certain way is like telling a person with no legs that they choose to be unable to walk.  It is only a “choice” once the person has recognized and understood the unconscious motivations behind their behavior and chooses to change them.

People with a history such as mine often put on a “false self” so that no one can truly know their true self:  to expose your “true self” would make you much too vulnerable, especially if your true self is inherently kind, sensitive and good because that is the type of person that is abused the most and most easily.  Most people via the internet seem to think of me as a complete bitch, understandably.  In reality, I am anything but:  I am actually unusually sensitive and kind but it is much too easy to take advantage of someone like that.  Better to keep others at a distance and the only way to do that is to be a bitch.  Kindness draws people towards you and hatred drives them away.  Don’t be nice because then people will only abuse you (again.)

People with a history like mine often end up being “revictimized.”  What does this mean?  It means unconsciously seeking out other similar people and situations from your past and being further abused.  Most of us don’t even think we deserve love:  most of us think all we deserve is abuse.  Love is painful because love is associated with deep hurt:  best to avoid this.  Stick with people who abuse you because you know it won’t hurt you as much as love, because it is all you know and understand.  Most of us even have the option of leaving when we are in a situation where we are being revictimized.  But many of us don’t.  We stay with those who abuse us and drive those who are kind to us far, far away because we think that keeps us safe.

“Splitting” everyone and the world into all good and all bad is another very effective way to keep you safe.  Almost nothing in the world if black and white:  almost everything is in shades of gray.  But when you see the world in black and white you think you are able to keep yourself much safer:  any tiny problem and/or disagreement and the person/object is automatically seen as all bad.  You keep bad people/things away from you.  But, believe it or not, two people can disagree about some things and still be friends, one or two people do not represent an entire group and a person can do things that are wrong but still be a good person overall.

The person we most often “split” is ourselves:  one day we are evil and worthless, the next we are competent and capable.  We are competent and capable until we notice a very small problem and then we become evil and worthless again, hence why we are in this state 99% of the time.

The defense of “splitting” can only occur if a person is abused at a very early age and it usually must also be severe.  All young children, two to three year olds, “split” the world in this way but they later reach appropriate developmental stages if they are not abused.  When a person is abused at this age they remain in this developmental stage until proper treatment is sought or they die.

Perhaps I am finally ready to let a couple of people into my life, people who are kind and understanding and have been through horrible times themselves.

Most people with a history such as mine are first put into group therapy with others who have had similar pasts.  The patients are finally able to start to relate and trust others that have had horrible experiences themselves:  the patients can only relate and begin to trust others with similar pasts because they know that they won’t hurt them, they understand their behavior and they feel the same way they do.

But having autism makes group therapy impossible for me.  Due to my autism I am completely unable to participate in group therapy, at least in real life.  I’ve never participated in “group therapy” over the internet so that may be different but I’ve never experienced anything like it so I have no idea.

People like me first start with others like me:  it is easiest to trust them.  Then, eventually, you move onto to others.

But it first starts with others like you.

One day you’ll reach out and you’ll discover that you truly had nothing to fear.  The positive experience will further your healing and you will begin to trust more until, eventually, you have nothing to fear.  You might think that it will be difficult to find others who have been through horrible things such as yourself but sometimes they are right under your nose.

So, happy 22nd birthday to me:  another year older, another year wiser.

(And yes, I took an Adderall and drank two Diet Cokes before I wrote this post).

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I like reading comments posted where people state that they don’t agree with my “views” on autism.

Quite frankly, no one really knows what my “views” on autism truly are so I’m not sure how they can know that they agree or disagree with me…unless, of course, they get their information from someone else, someone that that has never actually had a real conversation with me.  And as far as I know, NO ONE on the internet has ever had a real conversation with me so I don’t know how anyone can possibly know this.

I’ll write about my “views” in a longer post when I have time to think about them.

But, know this much:  I have been harassed by ASAN and other “Neurodiverse” advocates because I am high-functioning and have some obvious “talents,” therefore, I should automatically be a hardcore “Neurodiverse” activist.

At the beginning of my internet career I was but I was quickly turned off.  Many different things about “Neurodiversity” turned me off but one of the main things was the blatant disregard for those more severely affected that the “Shiny Aspies” that make up the majority of “Neurodiversity:”  the other 95+% of the “autism spectrum,” which includes me.

I felt I was one of the few that actually had experience with profound autism since I have a family member with profound LFA and have also experienced other severe disabilities while living in institutions.

Disability is NEVER all “good” and no “bad:”  but this is the message I seemed to be getting from “Neurodiversity,” which just turned me off.

Some “Neurodiverse” may think differently know because of constant criticism but I know they didn’t think this originally and may have only changed to please the public.

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I’m starting to suspect that because I exercise my freedom of speech and spoke the truth that I am now permanently “banned” from groups and organizations that are members of other certain groups and organizations.

I have applied for both membership at NYLN and to register for an event and yet I have heard absolutely nothing back.  There must be someone at NYLN (or more than one) who is blocking me from participating because I questioned one of the sacred cows of “Neurodiversity.”

Being “banned” from other organizations, blogs and whatnot has only encouraged me to become a “self-advocate” eve more.

It is time to start being “positive” and “inspirational.”

After all, I not only have to fight prejudice from society at large I have to fight it from within my own community, among my own so-called “people.”

“How They Hate Us” indeed.  I wonder, for once, if Ari Ne’eman is going to practice what he preaches.

How does “Neurodiversity” feel about itself “banning” a real autistic person, with an autism diagnosis, who was institutionalized and abused for years, who suffers severe psychological/emotional problems as a result, who is unable to do much of what these other less disabled “self-advocates” can, who suffers from severe, chronic and as yet unexplained muscle pain, weakness, fatigue and etc.

For once, is “Neurodiversity” going to do what is right or what it preaches?

Since it seems pretty obvious to me that no one in “Neurodiversity” is going to correct their highly unethical behavior and admit their mistakes it looks like I am going to have to since no one else will.

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Yes, I have a “job” now.

I definitely have some things I need to write about it and which other people with ASDs, especially those who are currently unemployed, should find interesting or perhaps even helpful.  I will be writing more posts about my “job” and people with ASDs getting “paid” to do work in general.  I have some ideas about how to get “paid” for things that you can do…but you’ll just have to wait…

Currently, I earn my main income by working in a kitchen.  It is typically just me and the woman I work for in the kitchen, making jelly, jams and preserves, chopping up foods, etc.

It is a simple, repetitive job.  It is quiet and has virtually no social interaction (hence why I can do it).

But I still get overwhelmed and tired.

My job is really only part-time and I am pretty sure this is all I will ever be able to work.

Having autism I know I get tired and overwhelmed much more easily than someone without autism.  I NEED my rest, my time to “recharge,” much, much more than a person without autism.

It doesn’t take long for me to become not only mentally exhausted but physically as well.  Physically, I can feel it in my body:  the tiredness, the lethargy, the aches, the pains, that I can feel my body tingle, that I swear I can feel my bones ache… For me it is not merely a “mental” problem but a physical one as well.  At first I thought it was merely a “mental” problem, that if I just “pushed” myself I would be okay.  But I CAN’T “push” myself:  I cannot take it either mentally or physically.  I think if I didn’t have these physical problems that I would be much better off mentally because I know that my physical problems have absolutely nothing to do with my mind state.

It’s REALLY annoying when you WANT to work, when you WANT to “push” yourself but you physically CAN’T because you will collapse.

I bought some cream to rub onto all of my sore muscles that is supposed to relive pain and I also take pain revilers.  But none of this truly helps:  I am STILL in pain, still fatigued, still unable to truly work.  These things help a little:  I would be unable to do anything without them but they definitely don’t help enough.

Sometimes I wonder if I have some sort of underlying physical problem that causes all of these physical problems that I have.  Since I have started work I keep telling myself that I NEED to go to the doctor but I have yet to go.

Does anyone have any idea about what could be causing my physical problems?  Is it merely due to my extreme sensitivity because I have autism or could I possible have some sort of physical problem?

Anyone know anything?

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Neurodiversity,

How can you live with yourself?  How can you live with yourself knowing that you support liars, lies and frauds?  I know that everyone in “Neurodiversity” knows the difference between right and wrong and yet they choose to do it anyway.

Why isn’t “Neurodiversity” more interested in actual autistic people who are who and what they say they are instead of continuing to support obvious liars and frauds?  Why, for once, can’t “Neurodiversity” do the right thing?  Do they not realize that there are many autistic and “neurologically” different people who could truly benefit from their cause but who refuse to join because of their extremely unethical behavior?  Why are they willing to have a few frauds and liars rather than many real autistic people?  Are they ashamed?  Terrified of embarrassment?

Why are high-functioning people stating that they are not that much different from low-functioning people?  They know that it is a lie but they do it anyway, do it as an attempt to blur the distinction between themselves and the profoundly disabled so that the topic of “cure” and the fact that it isn’t society’s fault that they are profoundly disabled and often lead miserable lives is never brought up.  Perhaps they feel guilty about this, guilty that they don’t want a cure since they are high-functioning and “proud” of their uniqueness but realize that there are those with autism that are profoundly disabled and truly do suffer.

No one will take “Neurodiversity” seriously until they take themselves seriously.

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